International Consortium for Health Outcome Measures (ICHOM)
WHAT IS ICHOM
Measures outcomes that matter most to patients
Is Global - International standard sets will enable benchmarking these outcomes across hospitals globally
Focuses hospitals on delivering care beyond the hospital walls
The International Consortium for Health Outcomes Measurement (ICHOM) mission is to unlock the potential of value-based health care by defining global Standard Sets of outcome measures that really matter to patients for the most relevant medical conditions and by driving adoption and reporting of these measures worldwide.
ICHOM has developed a number of standardised datasets to measure clinical and patient-oriented VBHC outcomes in various diseases including cancers of the lung, breast, prostate and colon. The utilisation of a standardised dataset can provide a benchmark for patient outcomes to which new treatments are compared against for effectiveness and cost-benefit.
ICHOM Guiding Principles
Full Care Cycle - Define outcomes around the full care cycle for a medical condition, not just the specialty or the procedure.
Condition - Clinicians from the multiple specialties who treat patients with a given condition and patients who have suffered or continue to suffer from the condition define the Standard Set together.
Focus - The Standard Set at its core focuses exclusively on the outcomes that matter to patients
PROMs - Every Standard Set includes patient-reported outcomes in order for the sets to capture burden, functional status, and quality of life.
Risk Factors - Every Standard Set includes a "minimum set" of initial conditions/risk factors to facilitate meaningful comparisons.
Comparison - All time points, definitions, and sources of data are always clearly defined to allow for comparisons.
ICHOM do not aim to reinvent the wheel. Their approach is squarely pragmatic. They build on existing instruments, and complement them with additional measures where necessary. The Working Group's research fellow takes the lead on reviewing these instruments, outcomes, and best practices for the medical condition being discussed.
ICHOM are consensus-driven. They strive for a democratic approach to decision-making. After every group meeting, members fill out a web survey; all actions require the backing of at least two thirds of the members to move forwards.
ICHOM are rooted in a robust theoretical framework. ICHOMs Working Groups follow the guiding principles inspired by the value-based health care theory of Harvard Business School Professor Michael Porter. They leverage his tiered outcomes hierarchy to build comprehensive Standard Sets that encompass all the dimensions that matter to patients.
ICHOM also insist that every Working Group has patient representation. Patients help prioritise outcome domains and, by attending every call, maintain the focus on the patient even during more technical discussions. Every Standard Set includes patient-reported outcome measures (PROMs), which capture the real-life impacts of treatment on patients symptoms.