If you are undergoing investigation or received a diagnosis for lung cancer, or have been diagnosed with breast, colorectal, prostate, or ovarian cancer at Royal Perth, Fiona Stanley or King Edward Memorial hospitals or St John of God Subiaco or Midland Hospitals, you may be invited to participate in the study. Participating sites
The research will collect information about your cancer care and outcomes of care that are important to you. Your information will be combined with similar data from other people diagnosed with cancer. Using clinical measures and patient reported outcome measures that have been used internationally, the research will trial collection of these in five public and private hospital settings in Perth.
We will use the information collected to:
provide information to individual health services on the care they provide;
work with health providers to identify gaps in services and variations in patient outcomes; and
develop new research and development programs to address these gaps and improve clinical practice.
What will you need to do?
Participation in the project involves you filling in questionnaires over a number of different times during your cancer care. These questionnaires are known as Patient Reported Outcome Measures and they seek to understand how the healthcare provided has impacted on you and your life
How will you benefit from the research?
The direct benefit to you will be timely discussions with your doctor about the outcomes measures you have completed to assist in a better understanding of the impact of the care on your life and may lead to improved care for you. The overall benefits of the research will be that the questionnaires you complete will become routine for all people diagnosed with cancer in WA. This will provide continued best care for all people diagnosed with cancer into the future.
What will be done with the results?
The results of this research project will be used to identify best practice and we will work with health services and other researchers to improve cancer care where needed. The results will also be published and/or presented in a variety of forums. In any publication and/or presentation, information will be provided in such a way that you cannot be identified.